RESOURCES FOR CAREGIVERS                                                           CLICK HERE TO RETURN TO HOME PAGE

LOCAL:

1.      County Social Services can usually provide information about services available in the area including caregiver support groups, respite care facilities, nursing homes, etc.

2.      Local hospitals can be a source of information about caregiver services available and sometimes they provide their own support groups for caregivers.

NATIONWIDE:

1.      Elder Care Locator is a national, toll-free, directory assistance public service of the U.S. Administration on Aging to help people locate services for the aging in every community throughout the United States.             Call: 1-888-677-1116 or visit www.eldercare.gov.

2.      Family Caregiver Alliance is a community based nonprofit organization that addresses the needs of caregivers through national, state, and local programs providing education, services, research, and advocacy. Call 1-315-434-3388 or visit www.caregiver.org; email: info@caregiver.org.

3.      Children of Aging Parents is a nonprofit, charitable organization that strives to assist caregivers of the elderly or chronically ill with information, referrals, and support.  Call 1-800-227-7294 or visit www.caps4caregivers.org or  email: info@caps4caregivers.org.

4.      Safe Return is a joint program of the Alzheimer’s Association and the National Center for Missing Persons.  A person who has dementia is fitted with a bracelet showing his/her name, the registered caregiver’s name, and the toll-free number for safe return.  Call 1-888-572-8566

5.        Leeza’s Place is sponsored by the Leeza Gibbons Memory Foundation and provides a safe setting where caregivers and those recently diagnosed with any memory disorder can gather to prepare themselves for the challenging journey ahead.  Call toll free: 1-866-655-3392 or visit www.leezasplace.org.

MAGAZINES, REPORTS, BULLETINS: 

1.      Care Advantage is for caregivers of people with Alzheimer’s disease and related illnesses.    This magazine is offered free and is spons0rced by the Alzheimer’s foundation of America.  One can subscribe by calling 1-866-232-8484 or visiting www.alzfdn.org or writing:

1.        Care Advantage,

2.        C/O Alzheimer’s Foundation of America,

3.        322 8^th Ave FL 6, New York                                  

4.        NY 10117-2071

2.      Alzheimer’s Research Review is published by Alzheimer’s disease Research, a program of the American Health Assistance Foundation, a nonprofit organization located at 22512 Gateway Center Drive, Clarksburg, MD 20871.  1-800-437-2423, 301-948-3244, www.ahaf.org.

3.      The Johns Hopkins White Papers on memory by Peter V. Rabins, M.D. and published by Johns Hopkins Medicine, Baltimore, Maryland.  These reports come out once a year and are full of information about Alzheimer’s and related illness including the latest research.  There is also a Bulletin on memory by the same author that is published more frequently.

TELECONFERENCING:

Care Connection is a free teleconferencing service designed for caregivers of  individuals with Alzheimer’s disease and related Illnesses.  The host is Dr. Jamie Rotnofsky, a psychologist and professional life coach, who offers support, inspiration, and connection with other caregivers.                                             Connecting is free and simple: 1-877-232-2992, guest identification number: 271004

BOOKS:

1.      The 36-Hour Day by Nancy L. Mace, M.A., and Peter V. Rabins, M.D., M.P.H. is copyrighted by the Johns Hopkins University Press and published by Warner Books, Inc. New York.  This book, touching on a wide range of issues associated with Alzheimer’s and caregiving is now in its third edition and has been revised and updated since it first appeared in 1981.

2.      Mayo Clinic on Alzheimer’s Disease edited by Ronald Petersen, M.D., Ph.D. and published by the Mayo Clinic in Rochester, Minnesota provides answers on memory loss, aging, research, treatment and caregiving.      

3.      Don’t Sing Songs to a Heavy Heart by Kenneth D. Haugk, PhD provides assistance on how to relate to those who are suffering.  It is sponsored by Stephen ministries in Saint Louis.  Call 1-314-428-2600 or visit www.stephenministries.org.

4.      Share My Lonesome Valley by Doug Manning, 1999, In-Sight Books, Inc. P.O. box 42467.  The author describes the “slow grief of long-term care drawing from his own experience.  For more info call, 1-800-658-9262 or 405-810-9501 or visit www.insightbooks.com or orders&info@isightbooks.com.

5.      When Love Gets Tough by Doug Manning, 2006, In-Sight Books, Inc.  P.O. Box 42467.  The author considers the difficult “Nursing Home Decision,” drawing from his own experience.                                           To learn more call, 1-800-658-9262 or 405-810-9501 or visit www.insightbooks.com or orders&info@isightbooks.com.

6.      Alzheimer’s Disease The Dignity Within is by various authors and is copyrighted by CaringConcepts, Inc., 2005.  It is described as “A Handbook for Caregivers, Family, and Friends.

7.      The Alzheimer’s Activities Guide by in it together is an educational service provided by Forest Pharmaceuticals, Inc., and bears a 2005 copyright.  It is a caregivers’ guide to daily activities for people with Alzheimer’s disease.